Individual Care & Support
In alignment with the philosophy of whole person care our Bone Marrow Transplant program offers its patients' and their families the following services and resources to support comprehensive individual care:
The patient and family is educated in lay terms and walked through the transplant process step by step by various members of the team including our bone marrow transplant coordinators, nurse clinicians, pharmacist, financial coordinator, social worker, nutritionist, physical therapist and the physicians. Patients receive a corresponding manual that serves as the patient's written guide throughout the process.
Continuity of Care
Our physicians work closely with referring pediatricians and oncologiests to ensure continuity of care. Patients are referred back to their primary oncologist and pediatrician once they are stable post-transplant and then followed by the bone marrow transplant program annually in our long-term survival clinic.
Every patient undergoes a psycho-social assessment and meets with our bone marrow transplant social worker who asseses their various needs including family support, financial support as well as each patient's readiness for transplant. Psychologists are an intergral part of our team and are readily available when needed. Support groups are a great resource for both patients and their family members.
Our dedicated bone marrow transplant dietician meets regularly with each patient assessing the changing nutritional needs of the patient before, during and after transplant, offering hands-on solutions to ensure early hospital discharge and best outcomes.
Physical Therapy/Occupational Therapy
Patients may undergo neurotoxicity or deconditioning secondary to chemotherapy and require appropriate evaluation and treatment provided by our physical therapist to facilitate recovery during inpatient as well as outpatient settings.
Palliative Care Team: Our palliative care team not only assists with pain and symptom management but also helps provide emotional and spiritual support, communicate with medical providers and coordinate care. We provide an extra layer of support based on your unique needs.
The financial coordinators at our program discusses insurance coverage issues as well as other needs that families have directing them to appropriate resources and help with fundraising, if applicable.